What we do

  • facesofnf

    Faces of NF

    Read these remarkable stories of People with...

  • education


    NF Mid-Atlantic provides a series of informative...

  • awareness


    Learn about NF, teach others, meet with...

  • support


    Connect with others with NF. We have...

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    Confused about NF?

    Are you confused about Neurofibromatosis? You are...

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    Events Calendar

    All NF-Mid Atlantic Events here....

No One Should Have to Face NF Alone

Since 1979 NF Mid-Atlantic has helped thousands of people travel the difficult road of this complicated disorder. We are here to help.


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There has been so little research on the psycho-social ramifications of living with the incurable, variable, often disfiguring, and potentially devastating disease called Neurofibromatosis.

With our assistance, Stevenson University received a small grant to produce a survey and will analyze it for publication.

The survey is completely anonymous and takes 15-20 minutes.Please help by taking the survey and encouraging others! This will be a great help for people with NF.


(If you have problems with the link above, please cut and paste the survey above into your browser).
Dr. Rivka Glaser explains here: