February 2013
ALERT! CONTACT YOUR CONGRESSIONAL LEADER NOW!
THE SEQUESTER MAY DEEM NF RESEARCH FOR A CURE "NON-ESSENTIAL"!!!! CONTACT THE PRESIDENT AND YOUR CONGRESSIONAL LEADER NOW AND TELL THEM WE MATTER!
To find out who represents you: http://www.congress.org/congressorg/directory/leadership_list.tt
(Files are in PDF format)
*****The Neuropsychology of NF1 by Dr. Barbara Couvadelli
13th Annual Golf Classic to benefit NF Charities
A Parent's Guide to Learning Disabilities Associated with Neurofibromatosis 1
Ellen Callegary, Esq. Slides to accompany her seminar: "Traversing the Educational System"
Executive Functioning: How To Stay Organized In A Confusing World slides
Guardianship and Its Alternatives: A Handbook of Maryland Law
My son's hero: Nomination letter for Dr. Putnam
NF1 Body Image Diagram (Spanish)
Study Identifies Targeted Molecular Therapy for Untreatable NF1 Tumors
The Basics of Neurofibromatosis-Slides
Support us through:
CFC #51268
Maryland Charities #1235
United Way #8851
