Schwannomatosis is the most recently recognized form of neurofibromatosis. It causes multiple schwannomas (nerve sheath tumors) to form on the central nervous system and chronic pan. No tumors on the vestibular nerves (as in NF-2) are evident.
The onset of symptoms is usually at puberty or older for both males and females. The precise genetic mechanism of schwannomatosis is unknown at this time.
(Files are in PDF format)
*****The Neuropsychology of NF1 by Dr. Barbara Couvadelli
13th Annual Golf Classic to benefit NF Charities
A Parent's Guide to Learning Disabilities Associated with Neurofibromatosis 1
Ellen Callegary, Esq. Slides to accompany her seminar: "Traversing the Educational System"
Executive Functioning: How To Stay Organized In A Confusing World slides
Guardianship and Its Alternatives: A Handbook of Maryland Law
My son's hero: Nomination letter for Dr. Putnam
NF1 Body Image Diagram (Spanish)
Study Identifies Targeted Molecular Therapy for Untreatable NF1 Tumors
The Basics of Neurofibromatosis-Slides
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