Neurofibromatosis is extraordinarily complicated. It comes in many forms, is often undiagnosed or misdiagnosed, and presents in a myriad of forms. Yet, it is the most common disorder currently classified as a "rare disease". Please feel free to refer your medical professional, family, employer, or friends to the following sections in order to get an overview of what NF is all about.
(Files are in PDF format)
*****The Neuropsychology of NF1 by Dr. Barbara Couvadelli
13th Annual Golf Classic to benefit NF Charities
A Parent's Guide to Learning Disabilities Associated with Neurofibromatosis 1
Ellen Callegary, Esq. Slides to accompany her seminar: "Traversing the Educational System"
Executive Functioning: How To Stay Organized In A Confusing World slides
Guardianship and Its Alternatives: A Handbook of Maryland Law
My son's hero: Nomination letter for Dr. Putnam
NF1 Body Image Diagram (Spanish)
Study Identifies Targeted Molecular Therapy for Untreatable NF1 Tumors
The Basics of Neurofibromatosis-Slides
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