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Neurofibromatosis, Inc. - Mid-Atlantic
8855 Annapolis Rd. #110
Lanham, MD 20706-2924
Phone: (301) 577-8984
Toll-free: 1-866-261-1271
Fax:    (301) 577-0016
 

 

 

 

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Pennsylvania Medical Resources

Albert Einstein Medical Center  
Genetics Division, 5501 Old York Road  
Philadelphia, PA 19141  
Contact: Adele Schneider , MD (Geneticist)  
Email: scheida@einstein.edu  
Contact: Rosanne Keep, MS, CGS  
Phone: (215) 456-8722  
Fax: (215) 456-2356  
   
Children's Hospital of Philadelphia  
NF Clinic  
210 Mall Blvd.  
King of Prussia- East  
King of Prussia, PA 19406  
Contact:  
Rachel Hacken, M.D.  
Phone: (610) 337-3232
 
 
Children's Hospital of Philadelphia  
Oncology Clinic  
34th St. & Civic Center Blvd.  
Philadelphia, PA 19104  
Phone: (215) 590-2299  
Fax: (215) 590-4183  
Contact:  
Jean Belasco , MD  
Peter Phillips, MD  
Elaine Zackai, MD (Evaluation)  
Anna Meadows, MD  
Diane Howard, RN  
Brett Kramer, M.S.W. Social Worker  
Phone: (215) 590-2246  
 
Magee-Women's Hospital  
Department of Genetics  
300 Halket Street
Pittsburgh, PA 15213  
Contact: Elizabeth McPherson, MD  
Phone: (412) 641-4168  
Fax: (412) 641-1032  
 
Pittsburgh Ear Associates  
420 East North Avenue, Suite 402  
Pittsburgh, PA 15212-4746
NF2
Contact: Douglas Chen, MD (Neurologist)  
Contact: Moises Arriago, MD (Neurologist)  
(limited to ear, facial nerve-related structures)  
Phone: (412-) 359-6690
 
Fax: (412) 321-3229  
 
St. Christopher's Hospital for Children  
Erie Avenue at Front Street  
Philadelphia, PA 19134-1095  
Contact: Libby Anderson , MD  
Phone: (215) 427-8413  
Fax: (215) 427-8358  
 
Thomas Jefferson University Hospital  
1015 Chestnut Street, Suite 617
NF1
Philadelphia, PA 19107
NF2
Phone: (215) 925-8650  
Fax: (215) 925-3821  
 
University of Pennsylvania Health System  
Division of Medical Genetics  
3400 Spruce Street, 1 Maloney
Philadelphia, PA 19104-4283
NF1
Contact: Reed Pyeritz, MD, PhD (Geneticist)
NF2
Contact: Douglas Bigelow, MD (Otolaryngologist)  
Phone: (215) 662-6970  
Fax: (215) 349-5977  
Contact: Katharine Nathanson, MD  
Contact: Barbara Bernhardt, MS  
Contact: Lynn Godmilow, MS  
Contact: Lisa Kessler, MS  
Phone: (215) 662-4740  
Fax: (215) 614-0298
 
 
University of Pittsburgh Cancer Centers  
Adult Neuro-Oncology Service  
UPMC Cancer Pavillion  
5150 Centre Avenue  
Pittsburgh, PA 15232  
Contact: Frank Lieberman, MD  
Phone: (412) 692-2600  
Fax: (412) 692-2610  
Email: liebermanf@msx.upmc.edu  
 
University of Pittsburgh Children's Hospital  
NF Clinic, 3705 Fifth Avenue  
Pittsburgh, PA 15213  
Contact: Gulay Alper, MD  
Contact: Sinikka Davis, MSW  
Contact: Kathy Gardner, MD (Neurology)  
Phone: (412) 692-5520  
Fax: (412) 692-6787  
 
University of Pittsburgh Medical Center  
Eye & Ear Institute  
203 Lothrop Street  
Pittsburgh, PA 15213  
Phone: (412) 647-2200  
Fax: (412) 647-9607  
Option for scheduling: 1-800-446-3797  
 
UPMC Presbyterian  
Department of Neurosurgery  
200 Lothrop Street, #B400
NF2
Pittsburgh, PA 15213  
Contact: L. Dade Lunsford, MD (Neurosurgeon)  
(gamma knife)
 
Phone: (412) 647-2256 (Opthalmology)  
Phone: (412) 647-0988  
Fax: (412) 647-6483  
 
Jack Wilburger, Jr. MD (Neurosurgeon)  
420 East North Avenue, Suite 302
NF2
Pittsburgh, PA 15212-4746  
Phone: (412) 359-6200 or 1-800-445-2340  
Fax: (412) 359-6615